Whabbit
God Bless You, and keep you and your family safe! I am crying to hard to go any further...you and your family are forever in my prayers!!!!!
I Pray the God Above eases the pain.........
Love .....Suki
Old codger or just medically downgraded???
(120 posts) (40 voices)-
copmom
MemberScuba... thank you for sharing. Wondered why you've been so quiet!
I found a couple of places online that might lead to some kind of help for your Rx's:
http://www.rxassist.org/
http://pfizerhelpfulanswers.com/pages/misc/Default.aspx
I don't know if they can help, but it's worth a try.I can't believe these pharmaceutical companies have the balls to hit people up with such exorbitant pricing when people need their Rx's! What is wrong with this country?? Never mind, I won't go into that!
My heart is crying for you, and my thoughts and prayers ARE with you!
{{{{{{{HUGS}}}}}} ~ LauriPosted 16 years ago # -
Whiterabbit-uk
Games GuruScuba I'm so sorry to read about your news. I lost a good online friend to something similar last year and it was heart rending. With such awful news it's hard to write something that doesn't sound patronizing. Nothing said can ease the heart ache you must be feeling right now. My prayers go out to you and your family. Man, your news really puts things into perspective. Take care.
With respect to the cost of the drugs; that is appalling. I've often though how bad pharmaceutical companies are for charging the prices they do. I was shocked at how much my own meds cost, but to see the cost of just one set of medicines for you is far worse. What sickens me most is these companies only tend to develop drugs that are going to be profitable for them.
Have you tried checking the directory of grant making trusts? Every public library will hold a copy of this marvelous book which contains a list of all the charities and foundations that give money to worthwhile causes. You just have to sift your way through thousands of these charities and write to the ones that fit your problem, explaining your plight. Each charity lists the causes they support. There are many criteria, some only give to specific groups, others only to people who live in certain geographical area’s, but I’m sure you’ll find some that may be able to offer help.
Both myself and a friend I mentioned this book to received money to help with problems (when we were students); though nothing like what you’ve just told us. The grant making trusts cover virtually everything from research to education, as well as medical problems to gender projects, plus many more categories.
The above book title is what it's called in the UK. I've not checked it out for a long time, but seem to remember that it was country based, so it may be that you may find the book is called something different. Just explain to the librarian what you're looking for.
Actually it may even be available online now – (I’ve just checked, it is, but the one I mentioned is specific to the UK. So I would phone or visit your local library if you can to see if there is an alternate title for the US or whichever country you live in. It may have the same title, or be called something different.
I used it to get funding for my first M.Sc. which was studying Acid Rain. When I was first granted the money, I was told the reason it was given was that I came from the same home town as one of the trustees. That’s how wacky it can be
Posted 16 years ago # -
Paulga
Memberscubaguy......well you sure made ME feel that i was kicked by a horse in the cajones!....it has taken all day to get over your post,...please keep in touch with us,...all the Mums are gutted,...as is maizeydaze,...buckleysmom has had a computer problem and is off line, but when she hears your news, i know as you do, how she will take it,...as will all of the Word Association Gang,...and everyone who knows you, i sincerely hope something can be done for you to have that very expensive medication,..take a firm hold my friend,....i will be thinking of you.
Paulga.....aka.....Philip
Posted 16 years ago # -
Busy Lady
MemberScubaguy, I found an Illinois resource card for patient assistance. It is created by Southern Illinois University School of Medicine. Perhaps one of the organizations listed will be of some help to you.
http://www.siumed.edu/physurg/PatientAssistanceCard08.pdf
To all:
You are amazing, and I am humbled. My prayers follow you.
Posted 16 years ago # -
Buckleysmom
Member<-----Heartbroken
ScubaDude! I am so, so sorry to hear about your condition and I am very glad you told us. They've been advertising the Cancer Treatment Centers of America on TV for a few years now. Here's the website...http://www.cancercenter.com/midwestern-hospital.cfm. Please, please contact them, there's even one in Chicago. People are being told they only have a short time to live but these centers are changing that completely. They may also know who can help with your meds. Please contact them, Scuba, and don't wait! You can even chat online with them. Also, Montell Williams supports a group that haelps with prescriptions. We've been getting hubby's meds at a huge discount through them. They're here....http://www.myrxadvocate.com/?gclid=CPaPipb0u5QCFRuD1QodxldwTw
No matter what else you do or don't do please don't give up. Don't take the doctor's word as the final word, no matter how good or renowned he is. Oh yes, and about Cobra.....in special circumstances you can get covered for an additional length of time so contact them and find out what your options are. We were able to get covereage for a full 36 months.
Please keep us informed of your progress. I will be praying for you, your family and your doctor(s).
BIG BIG HUGS
RoxPosted 16 years ago # -
maizeydaze
MemberScuba,
I woke up at 4 AM got coffee and sat down to check the recent posts on the forum. Normal routine. Yours was the second one that I read. This thread has been bringing tears to my eyes since it started, reading about everyones plights with their medical problems and crappy situations. Any problems that I have are minuscule and mundane in comparison. My heart goes out to all of you. But, today was different, hitting even harder than normal. I'd been missing you here and whenever I'd see that you posted in the last couple of months it made me smile to see that you'd been here. I remember all the fun we'd had bantering about the tools, ponds, your garden and...marriage, of course, and hoping that we'd all pick back up where we were. I should have realized there was more to your absence than your giving diving advice to others. I didn't think that would have kept you away from us for so long. We know you like us too much.
For now, I don't have any leads that will help with your prescription costs. I see that some of the others have already given you some places to check. I will be looking too! But, in the meantime stay in touch as often as you can. If we can do nothing else, we can cheer your spirits. We are all friends here and don't forget that. Friends stick together and are there for each other, no matter what.
Your friend,
SharonPosted 16 years ago # -
clobermier
MemberScubaGuy,
All I could think when I read your post was, "Damn. Damn..." Cancer is such a rotten enemy. Anyway, I remembered that my stepdaughter had written to one of the drug companies to help with a very expensive prescription, and so I checked out the Pfizer web site. I found this:
I need help paying for medicine. Who do I contact?
Pfizer has programs that can help Americans without prescription coverage save on many Pfizer medicines, no matter their age or income. People with limited incomes may even qualify to get their Pfizer medicines for free. Call 1-866-706-2400 or visit http://www.PfizerHelpfulAnswers.com for more information.I hope it might help.
Cindy
Posted 16 years ago # -
Hi, Scubydo,
we often laughed about some childish goofiness together.
Now we are crying in our helplessness.
When you would be near me, we could speak, we could hug and we could remain silent together.
When you want to speak - here are friends to listen;
and there will be a way to come over the email addresses you want to have.
Besides that, I hope you will get some assistance with your insurance problems.
I'm sure, there will come times for laughing, learning more html
or a giggle over my language lapses.
Scuby, I'm thinking of you and wish you all the best.
grayloxPosted 16 years ago # -
scubaguy (R.I.P.)
MemberHello to all
Had to bring up this old thread, as it is the only appropriate place to put my post. For the new members not sure of what I am talking about, this link will explain.
http://www.giveawayoftheday.com/forums/topic/3577#post-37887First of all I want to say THANK YOU to all of my friends who showed compassion, understanding, offered prayers, and help with the information that you provided. Mainly Lekanaw,Copmom,Whiterabbituk,Paulga,Busylady,Buckleysmom,Maizeydaze,Clobermier,Gralox,and Jempeace and if I have left anyone out please forgive me as there were so many and it was four months ago that all this started.
Some of you that I have e-mail addy’s for, I will send a personal and long overdue reply and thank you.
I will try to give a brief update as to what’s been going on since my last post of the previous page. Having made many phone calls and much research on my situation (some of which was provided by you wonderful people). I was able to get into a somewhat experimental program which is provided free for a year, by the manufacturer,(Pfizer) of the drug Sutent.To date I’ve been on the medication for almost four months, aside from some of the side effects (which are no fun…. I will not go into the details).
Although as a side note a little of what happened. One of the more predominant side effects is that you could have a loss of hair, so luckily having had a full and thick head of hair all my life I did not want to experience it slowly falling out. I decided to go and get a crew cut, as short as can be without being bald. Now you have to know I have never had a crew cut in my life, especially with my big ears. Well as luck would have it, that was not the side effect I experienced, Bwwhahaha! Oh well I’m not complaining.
As I was saying having been on the medication up to this point my doctor says that because of the symptoms or the lack of, there is a good possibility that my condition might just be going into remission Whoo Hoo!! we won’t know for sure until I go for another Cat Scan, soon to be scheduled,(fingers crossed, knocking on wood and most of all many prayers and promises to the Lord Above).Will just have to wait and see and will try to keep you posted as to what’s happening.
I have tried to keep up with what’s been going on in the forums here but the medication really makes me fatigued and just making a lot of preperations,hopefully I can post more often, since lately I’ve been feeling better, not as much pain,(better living through chemistry),although I do get a little spacey at times.
I would like to say a big Hi to all the new members and look forward to joining in the fun. Also congratulations to all the new Mods.Thanking you in advance for all your help and the time you put in here.
That’s it for now, will try to post more later, because of the meds I am up at all hours of the night.Live Long and Prosper “ Klaatu Barada Nickto”
Bob the ScubaguyPosted 15 years ago # -
Whiterabbit-uk
Games GuruHi Bob, nice to hear from you, and glad to hear things are a little better despite the fatigue. I do hope things continue to improve with this new drug.
Take care and see you around the forums.Regards
Stephen
Posted 15 years ago # -
copmom
MemberScubaguy.. thanks for the update, and so wonderful hearing from you!! If the meds put you in remission, then prayers have been answered, and believe me, I KNOW prayers ARE answered!
My husband just said: "if you shave off ALL of your hair, you'll get even better! Just take the leap and join the rest of us bald guys!"
He just had to say that.. a bit of humor makes things better!
Or else, I do still have the wig I wore when I went bald from my chemo.. would you like to borrow it?? Now that's an offer you can't refuse! *-)
{{{{{{{HUGS}}}}}} ~ LauriPosted 15 years ago # -
Hi guys, I'm one of the broken ones too, (I feel like I'm coming out of the closet):)))
I can so relate to not wanting to go on anymore 'cause you know it's only get worse with time. I didn't have it as bad as some of you guys, just a broken neck, shredded muscles, ripped ligaments and tendons that will never be the same. Vertebra twisted in the back so bad that there is really not much to be done. Acid reflux from the meds. Surgeries that helped one thing, but caused grief with something else. Good doctors, bad doctors and stupid doctors...bah!!! I've been dealing with it for a long time. I could write a book on pain management without drugs, I gave up on them after the first five years and only resort to a drug vacation when I start barfing from the pain or can't go to sleep or stay asleep for it.
I have to admit I haven't read all your stories, I can relate to them too much for me to deal with tonight. I'm more than sure you will understand. What I have read, has inspired me to keep fighting; I was getting pretty depressed again as I'm having to give up more and more, the "worse with time" is here and now.
I just know that there is a reason we are all still here, once in awhile you get to see what the reason is and that is really special. I finished raising my kids on my own(husband left after the second year) they are all adults with families now, I have more super grandkids than I ever expected(8)and they are all really good to me. I've managed to sneak a lot of life into the corners. I really started having problems and more pain than I can almost deal with starting earlier this summer. I get so tired. I hate whining, but I've started asking my family to help me more. After they got over the shock of mom not being able to go any further they have been very supportive. I take care of my mom full time and help my kids and sister as much as I can but lately I am having to say no more often than I'd like, it makes me sad and also mad.
I'm sorry this isn't well written but this week has been so rough that the brain isn't working right. I fell twice last week as my darn left foot just suddenly disappeared, grrrrrr!
December 18 will be the 21st anniversary of the car wreck. A sudden ice storm, an accident, I got hit twice from the back by a van that had been hit by the car behind him. It wasn't anyones fault. Every day has been a gift because I know how close to dying I got.
Just know I'm one of your cheerleaders here in the background. Keep on keeping on.Posted 15 years ago # -
Whiterabbit-uk
Games GuruHi Idahl, welcome to the club. 21 years is a long time to suffer. It's been only three years for me so far.
regards
Stephen
Posted 15 years ago # -
Hi, scubydoo
so good to see you again and hear that there is hope and hear that you did not lose your hair. Welcome back!
LDahl like WR said, welcome to the club, even if you (like we all) would rather stay outside this club.
I did not have a car crash, but I always say and feel - in the figurative sense - that my train crashed against a wall. Pain and other symptoms accompanied me all of my life. I remember that I was crying for pain all nights long as a little child. Though I lived a very (too) active life. As the train crashed in 2000 finally the diagnosis was clear : Fibromyalgia (FMS). As I was really at my end, I accepted every pill. A felted grey cloud was around me for five or six years, only the increasing pain got through it. One med was changed against the next, under heavy withdrawals.
Always the best med was laughing.
But you all know: not everybody who appears happy is happy, some only laugh as not to cry.
Now I am, like you Scuby, a guinea pig for Pfizer. With heavy side effects, and nearly no pain relieve. Even I got the warning, that I could lose my hair. Well I did not completely, there are still some left,
my gray_lox. ;)Have a nice day or night friends.
Posted 15 years ago # -
scubaguy (R.I.P.)
MemberHi back at you all
Whiterabbit-uk- The name, Games Guru is a perfect fit for you,keep up the great work you do,it is greatly appreciated.I just started playing WOW (Wings of War)again.Had to D/L it to my Vista because my XP/desktop has a major malfunction,only problem is on the Vista laptop the game hangs up every two min.or so,oh well it's better then nothing.It's still one of the greatest games you brought to my attention.
Thanks againcopmom- Great to hear from you,hope you are doing well and say hi to your Hubby for me. About the wig, I have my own plans,I've been saving Brandy's fur after brushing her,soon I'll have enough and plan to paste it to my head,I always wanted to be a blond,Bwwhahaha! {{{{{{{HUGS}}}}}} back at you!
notblocklox- I'm confussed,why the new member name,you are the same Lox who taught me some of HTML/How To Make Lasagna. I am very sorry to here of your pain and hope things will get better for you.You are in my prayers.
Better to be a guinea pig for Pfizer then the altenative,I'm not ready to go to Heaven yet,well at least I hope thats wear I'll end up!ldahl-Hi I'd say welcome to the forums, but from your profile you've been around for awhile.Glad to see you came out,"(I feel like I'm coming out of the closet)"It can get lonely in there,and your not whining, sometimes it helps just to be able to talk about it and share your situation with others.Don't hesitate to come back here if you feel like talking. Don't think of us as being broken
"I'm one of the broken ones too" were just slightly used and a little dented.I hope the day brings you some relief.I still wonder where those "Golden Years" are,that I keep hearing about.
A great day to all of you
The Sunshine of Paradise AlleyPosted 15 years ago # -
Whiterabbit-uk
Games GuruFunny you should mention Wings of War as I've decided to post that up as fridays free game. I never got a proper post when it was posted the first time around, so I think that more will enjoy it if I mention it again.
Posted 15 years ago # -
Thanks WR, I don't know why, but talking about myself always embarrasses me...not that I don't do it, but later I feel like such a dork.
Lox, there are times I wished I had a magic wand that I could wave and it would lift away the layers of hurt. This thread would have me waving away like a flag in a storm. You wrote: "only the increasing pain got through it" That is why I quite taking pain medications except when I couldn't go any further. I felt they did more harm than good for me. To me, life wasn't about being a fuzz brain.
SG, maybe us dented ones have to settle for Golden Hours? Sorry, I was feeling "broken" last night, but got the red handled chin-jack out and tonight am ready to get on down the road a bit further. :) Today I remembered para-sailing, I had always wanted to do it every since I heard about it. My dad made me a huge red kite when I was a kid and I could imagine flying up in the sky on it. He told me in ancient times people did. He said the flying was wonderful, the coming down was the tricky part. I took the risk and when I got the chance, I went, one of the most perfect times of my life. It was a very windy day and they let me out higher than anyone else, I could see for miles and miles. It was just as I had imagined what being on a kite would be like. I was a bit afraid about the coming down part, but it turned out to be as easy as walking from one room to the next. I stepped out of the sky and onto the boat(felt a bit like Tinker-Bell). The Sunshine of Paradise Alley, I'm not sure what you meant by that, but it's what made me remember the day with my dad and the big red kite against the bluest sky.Posted 15 years ago # -
scubaguy (R.I.P.)
MemberWith BuBBy’s permission, I have collected some helpful health tips posted by other members, from another thread,for the purpose of making them easier to locate in this thread which is on the topic of health issues. Credit has been given to the members offering the health tip, along with a link to the original post. In some cases, only the part of the original post, which was pertinent, was copied here.
---------------------------------------------------------------------------------------From Txnnok
Funny you should bring up disability. I just went to my first appeals hearing last week for my benefits. I had life saving trans oral neural cranial surgery. I had my odontoid bone pushing on my brain causing me to have a kiari (brain falling into your neck basically) plus neck bone damage. They had to go through the roof of my mouth to that bone to chop it and then flipped me over cracked my skull open to open my brain and then shoved a couple of metal rods in my neck to hold it all still.
The point of all that was to get to the my hearing. They had been denying me for two years now and I finally get to that hearing. The sum of it was that I can't do any job, but possibly 1. They think I might could be furniture salesmen. Of course, their doctor didn't show up, so we have to wait for him to say whether my medicine will prevent from doing my that effectively, before the judge can make a ruling.
He's paid by the government, so what do you think he'll say.
I'm glad you got yours, rabbit. I swear it’s like pulling good teeth with those people. Hard and painful. I don't the UK is much different. Stick it the little man is the same worldwide.
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From Whiterabbit-uk
Hi Txnnok. I actually lost the appeal the first time around. The same thing happened at the first appeal hearing as with yours. The doctor failed to turn up so it was cancelled. I had to wait several weeks before a new meeting was arranged. The lawyer who chaired the second meeting was the rudest person I've ever met in professional circles. He never gave me the opportunity to reply to any queries properly, and at the end of the meeting, I was told I was still not entitled to the care component of DLA. I appealed the appeals decision. It took nearly a year to get anther meeting, and I must say I was extremely nervous. I needn't have been. The panel had already decided that anyone appealing an appeals decision must be genuine, so they asked me if I was satisfied with the lowest rate, which I was because I’m not totally incapable. Still, it was a long year. I’m pleased that it was backdated over a year. :) My advice to you is fight the decision and keep fighting till you've won, even if it means taking it to the highest level.
The operation sounded horrific.
It's unfortunate that there are too many scumbags conning the system; which then makes it harder for genuine people to claim benefits.
Good luck for the future.
Regards
Stephen
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From Txnnok
Thanks for the well wishes Stephen, I was reading the some of the other posts and yours doesn't look like any fun either. I was trying to think of something helpful for the nausea and stuff from the medicine that you’re going through, but there isn't anything really except to just go ahead and blow junks. Oh sometimes baking soda helps, a couple of teaspoons in a half cup of water, especially if you’re getting acid reflux from the meds.
Chris
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From queenfisher
I just had to add a little comment here not so much about the games but about you guys. I left my first comment earlier on the GOTD site and I'm sorry if it sounded a little snotty. I didn't mean it to. I too am getting ready to fight the disability dragon. I have degenerative disk disease in my spine. Already had 3 disks fused n getting ready for the next. Till then they'll just keep sticking me with needles. I try to stay positive like I’m sure the rest of you do but some days it just gets the best of you. Today was one of those days. I look forward to coming to the site. Even if there’s no game I get to learn new things about software and you people. So when I log on and read the griping it ticks me off. I've never paid anything, I'm sure the software guys don't pay to give their stuff away, and there’s no ads. So I'm pretty sure no ones getting rich. And it really bugs me about people who gripe about getting stuff when it’s free. So I just had to say my peace earlier. But I just want you to know Stephen and the rest of you who take time from your lives to make our little GOTD world a better place, Thank you it’s appreciated. (PS Stephen, try raw almonds for the nausea)
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From Txnnok
Don't wait till after the surgery to do start the process. I did that, but I was planning going back to work. If I would have done from the start, they couldn't have denied me. That way after it’s all over with and you feel like you can work you will have the fall back. They will just deduct your earnings from your Dis. check.
I don't think they will penalize you for trying to go back to work, but I'm not sure about that. Oh and if you can get a letter from your doc get it now. They don't like to though, they want to believe they completely healed you with their god like powers.
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From copmom
Stephen... you might want to try putting a bit of rubbing alcohol on a cloth and breathing that for the nausea. Just a suggestion.
In friendship ~ Lauri
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From Txnnok
Oh, I had forgotten one other thing Stephen for your nausea, which you probably get or had gotten at one time. Phenegran, that’s really good stuff and works and if it doesn't do all of the job. It will make you drowsy and you can sleep through the nausea.
I have gone as far as to make myself throw up to get it over with (does work), but then you probably wasted your pain meds you just took that made you get nauseous. My baking soda recipe I gave before is just for the acid reflux, but sometimes the relief can get rid of the nausea.
Oh and no drinking alcohol for me either since the start of my problems. I learned quickly for my meds that alcohol would make it worse. Since alcohol will intensify the effects of the opiates and can make the nausea worse or get me really ignorant.
copmom,
Where did you learn that? I have never heard of rubbing alcohol for that purpose.
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From Whiterabbit-uk
Thanks for more tips regarding the nausea thing. The doctors initially prescribed me Stemetil, which didn't help at all. They now have me on cinnarizine, which seems to be helping, but if I exert myself to much (and when I say exert myself, I only mean really light duties like putting my cloths back into my wardrobes), I still get really sick.
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From copmom
txnnok.. I picked up that breathing rubbing alcohol tip from my brother. He's an anesthesiologist. He said that it tricks the olfactory. sensors.. if that's the right word. And yes, penegrin also helps. I had an Rx for that back when I was taking chemo, but never did have to use it because they injected me with something to help prevent nausea.
http://www.giveawayoftheday.com/forums/topic/3928/page/2#post-42716---------------------------------------------------------------------------------------
From hamstergirl
Stephen - here's my 2 cents on the nausea thing - I nursed my last roommate thru cancer. She was already very ill and bedridden before the diagnosis and nausea was a big part of it - I would give her cotton balls soaked in essential oils in one of those little self - zipping kind of plastic bags used for coins - lavender in one, and peppermint oil in the other. That way she would have them right there and ready to go when she needed it. When she got nauseous, she would open one, and inhale from it for a minute or two.(I'm Wiccan, and we were trying all kinds of alternative approaches to illness) and she said it helped immensely. It sounds a little like copmom's explanation of the alcohol - peppermint oil is pretty strong. The other thing to do is keep some dry crackers, or Melba toast by the bed. When you wake up, DON'T sit up, just reach over, grab a couple crackers, and eat them. Wait a minute and then get up - this is an old trick for morning sickness, LOL, but hey, nausea is nausea, right (now stop laughing...if you can ;) and I can vouch that it worked for me…
http://www.giveawayoftheday.com/forums/topic/3928/page/2#post-42727---------------------------------------------------------------------------------------
From Copmom
Gee hamstergirl.. I'd forgotten about the saltines with morning sickness. They sure did help when feeling 'green'. Boy, I sure ate a LOT of those with 4 kids! But, I think you hit it on the head, regarding the alcohol.. it's not that smell particularly, it's any strong odor like the peppermint oil.
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From Whiterabbit-uk
Thanks again ladies. All are worth trying, if only to stop the darned nausea, which seems to be happening more and more each day. I’ve even tried dropping the dose of my opiates by 5Mg, but that hasn’t helped. .
I still have bottles and bottles of essential oils because we were into it in a big way years ago. I used to put oils everywhere (such as on light bulbs and special holders that hung over radiators, so when the central heating or lights were turned on, you’d get the essential oils giving off increased amounts of fragrance - it was probably overpowering to visitors, but we were so used to them we didn't notice) Though the main use was for meditation and massage. However, since the IRA bomb, which blew up the Corn Exchange in Manchester where I used to buy most of my oils from, I've not bought many. Also, as I wasn't an expert, but knew that some oils were dangerous to pregnant women, we stopped using them just as soon as Michelle became pregnant the first time. We never got back into using them. It's amazing how long some oils last. Though all the common ones such as peppermint oil, chamomile, tea tree and lavender have long since gone. There's nowhere nearby that sells oils unfortunately. I even bought a distillation apparatus with a view to getting my own oils from the various plants that grow wild hereabouts. (Originally I had to do it as an exercise when doing first year undergraduate chemistry at uni’)
I agree with you both that it’s probably the overpowering smells that work. I’d forgotten the power of nature.
Regards
Stephen
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From Txnnok
Stephen, Get the Doc to write you phenigran instead of that other. I love Phenigran.Don't get the rear entry ones make sure they are edible. Like I said in post, if it doesn't get rid of the nausea
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From Ibwebb
Hey all..
I was browsing through the forum and came across this thread. I don’t know if this info is helpful to any of you anymore but thought I would pass it on. Ginger (regular, candied, crystallized, etc) is good for nausea as well. They sell it in suckers (lollipops), lozenges, teas, etc for people. I too am disabled and try to find more natural ways to deal with stuff (trying to avoid side affects mostly) and I found out about this long before I became disabled. It happen to stick in my head from when I was a phlebotomist (worked in the lab drawing blood, preparing lab samples, and assisting in autopsies) and worked in the CTS (cancer treatment center). Many of the people on chemo said it was the best thing ever for their nausea. Many said they would just buy the candied or crystallized ginger (it comes in small pieces when you buy it; usually) and they would just put it in their mouth and let it melt. Some swore that if you put it under your tongue it worked better and others said between your cheek and gum, but I didn’t notice it working better than the other in either way. It does work well and without the side effects of the meds. WARNING it does have a very strong flavor that will stick in your mouth. It is for that reason that I do recommend small pieces and to use the candied or crystallized over straight. Also, the teas work well if the flavor is too potent to use straight out.
Ibwebb
http://www.giveawayoftheday.com/forums/topic/3928/page/2#post-46553Posted 15 years ago # -
Papaya Enzyme helps immensely with acid reflux. At least it does for me, as you all know everyone is a bit different, what works for one, doesn't usually work for all, but it is something to try. It is inexpensive here, I have never tried the fruit just the tablets. My sister, a chemist, had heard it helped and brought me my first bottle. They are made with powdered papaya, they are slower acting, but used over 4 or 5 days, they will settle your system down.(no side affects)Pleasant tasting too:))
Posted 15 years ago # -
Broken finger: Once,
Deadly sick: twice,
Slammed finger (almost broken): thrice,
Cold: twenty,
Gone to hospital: nine (Not all accidents were so serious...)Posted 15 years ago # -
bluhoteyes
Memberi can't believe i missed this thread 4 months ago. WR from talking previously i knew about some of your misfortunes , but i am no longer ignorant to your situation and i can't not understand how you feel on a given day but know that my prayers are with you and always will be. Scubaguy i am hoping that you were able to visit the cancer treatment center and i take it you are and on your way to recovery thank God. Wasn't sure when starting to read this thread tonight if you were going to go meet our maker or be on the road to recovery, but when i seen you asking for help the first place that came to mind was there and i seen one of our fellow avid readers guide you in that direction. Pfizer or however you spell their name comes out with some very useful powerful medications that for the life of me don't understand how they can charge such exuberant amounts of money to people who are willing to try anything to just be in this world that we have come to know. It seems money is the route to all evil and i am beginning to believe that more and more each day. I have read each of your stories tonight and i do wish you all a full recovery and loved the great success story too. Myself i am plugging along as usual, but a little bit slower everyday. *HUGS* I am sorry i missed this back when i should have posted but know i do think of you all often and sure hope Hannah is doing good too :)
Posted 15 years ago # -
Whiterabbit-uk
Games GuruHi Bluehoteys, glad to hear Hannah is okay. Sorry I've not visited the website in an age. Also thanks for your well wishes. It does seem that virtually everyone who comes to these forums (apart from Webmaster with his broken finger)have some measure of disability. To you all I wish you all better health in the future. No matter how bad it gets, there's always something positive to keep the spirits up. Thanks also to the many fixes for the nausea that I've been getting. After stopping one of the drugs I was taking (because it is now banned by the European Union), the nausea has actually subsided quite a lot. I still get it, but not too the extent I was getting it previously. I've not actually been sick since stopping the drug, which was called accomplia, an appetite suppressant. I'm not seriously overweight, but because of the breathing problems I have, the medics thought that the extra weight I'd put on across my belly, the drug may help to get rid (which it did as I lost nearly 2 stones in about 4 to 5 months), though the sleep apnia is still a problem.
Have a great week folks. I hope you've all started your Xmas shopping, lol.
regards
Stephen
Posted 15 years ago # -
copmom
MemberStephen.... don't even mention Christmas shopping! With 4 kids, 10 grands, and 5 great grands.. I think I'm just going to send/give all of them money since they know what they need or want, and I hate shopping!! I know that's taking the easy way out, but I just can't stand crowds and my back won't let me walk too long or very far. Even at the grocery store, I need that basket to hang onto! We did get 2 bikes for the 7 & 8 year old grands.. eeks, they'll be 8 & 9 in December! Those are safely hidden away in our storage shed that's padlocked. They outgrew the ones they have a long time ago with the training wheels!
Hope everyone has a wonderful day! I've been busy playing hidden object games to pass the time.
Is rainy, chilly, foggy, gloomy and overcast here right now.. leaves all over the place. Did try doing some raking yesterday, but couldn't do that for more than 30 minutes.
As for my back and arthritis.. my rheumatologist told me to try a regimen of two 500 mg. Tylenol 3 times a day. It has helped with the pain quite a bit to a point. She said the next thing would be a prescribed regimen of Aleve, but that makes you swell up, so am trying not to have to use that.
When I talked to my chiropractor (haven't seen him a long time), but did bring him my latest x-rays, he said he saw osteo arthritis in the sacro joint in both hips, and there is a degenerative disk thing in my lumbar spine.. there were quite a few things going on. Asked if it's 'fixable', he said can't make permanent structural changes or make straight again but can possibly get symptomatic relief and that there's nothing there that would lead him to believe I can't be helped. I haven't bit the bullet on going back to him again because I know that once I do I'll have to see him several times a week, and the adjustments will bring on other aches and pains that I didn't know I had!!!Posted 15 years ago # -
bluhoteyes
MemberHi Bluehoteys, glad to hear Hannah is okay <<<<< it is copmom that has Hannah as a granddaughter i was wondering if she was doing ok sorry i didn't write that very well. I was wondering if she was doing ok. I know the website has been down for some time now. Another remedy that helps for nausea for me is wintergreen gum. I am the one that told you about my sleep apnea awhile back though and to be honest been almost a year that i have had my cpap and it does wonders it wasn't very comfortable to start with but the way i feel in the morning after not having it on and having it on has really made the difference with that machine. I am no longer tired when i arise unless of course i didn't get much sleep. For the most part though I can say that i feel like I got a rested sleep after about 7 hours instead of sleeping 12 and still feeling tired. I suggest you ask the doc about the cpap machine Stephen I know i wouldn't trade mine back for anything LOL
Posted 15 years ago # -
bluhoteyes
MemberHey copmom you said aleve makes a person swell that isn't true i take 500mg twice a day of naproxen which is the same thing as aleve just a strong prescribed dose and it actually have a antiinflammatory component in it might want to give it a try it does do wonders for me i couldn't live without it, but the downside i have to take stomach medicine along with it or i get heartburn / indigestion real bad :)
Posted 15 years ago # -
Archangel
Member@ bluhoteyes
NSAIDS or anti inflammatories almost killed me. Naproxen, Celabrex (not correct spelling) aleve, aspirin ect. can't take any of them now but I use to and had no stomach problems but they cause a pulferated ulcer and my stomach contents leaked into my body cavity which in turn started an infection.
Please everyone be careful with them. As far as pain goes Aspirin worked the best for me but now its a no no too because its a nsaid.
Posted 15 years ago # -
copmom
MemberGood morning! bluhoteyes, if the heartburn is a problem, don't dare chance that since I already have that. And Archangel, thanks for the tip on stomach problems!
Hubby points out these little old ladies walking all bent forward, and says that's going to be me one of these days.. I can't quite straighten up completely without really concentrating on it!
As for Hannah's site being down, they moved a few months ago way out into the country, so they had to change their email provider. I guess that's the end of that, but she's still chugging along. Thanks for remembering!Posted 15 years ago # -
Busy Lady
MemberArchangel, I AGREE! Be careful with NSAIDS!
My mother is a victim of rheumatoid arthritis. She was prescribed NSAIDS (such as Celebrex and Naproxin Sodium--Prescription strenght Aleve). Her rheumatoid arthritis caused enough joint destruction to require 4 joint replacements. Without these pain meds she would never have managed. I understand the need for them. In her case, though, not one-doctor, nurse, or pharmacist ever told her of any possible danger except that she must eat when taking it. She did eat with this medication. Unfortunately, no one monitored her kidney function.
When she had pre-op tests for hand surgery this summer to repair Vaughn-Jackson syndrom (severed ligaments due to the rheumatoid)--they discovered she was suffering from kidney failure. According to two nephrologists it was caused ENTIRELY by the NSAIDS. Both of these specialists were furious when they discovered this negligence.
For heaven's sake be careful with medication, even if prescribed. If you must take the NSAIDS, take special care of your kidneys also. Restrict salt, potassium, and phosphorus in your diet. Have your kidney function monitored. Talk to your doctor about the risks. Kidney failure (or reduced function) is insidious. It masks itself and doesn't present obvious symptoms. Please, please, please use caution.
I can't tell you how difficult this has been. She has suffered with the rheumatoid and joint destruction for twenty years, but she only took the NSAIDS for a portion of that time.
All I can say is, she is a great lady who deserved a better lot in life and this current situation is more than a little disheartening. Please protect yourselves.
BZ
Posted 15 years ago #
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